Jameson is 10 Months Old!

Well, tomorrow anyway!

Jameson at 10 months

  • Has 6 teeth! Wow and they are sharp
  • Loves to use those teeth to bite ANYTHING, including me
  • Is crawling (in his own baby turtle way) and is very quick
  • Kicks his feet like crazy, will be fun to see him in the pool this summer!
  • Wants to play with anything he is not supposed to
  • Favorite non-toys: jewelry, strings on your sweatshirt, Tupperware
  • Loves his doggies, he giggles non stop when he pets them with his feet!
  • Weighs 20 lbs and is 2’5″ tall
  • Wears his prosthesis everyday about 3x a day
  • Flew in an airplane for the first time last week!
  • Sleeps through the night finally. Well, he has since about 7 months, but it is worth mentioning!
  • Eats crackers and snacks all by himself, still trying to figure out how to help him use the spoon though
  • Loves all kinds of food (thank goodness we don’t have a picky eater) yay!
  • Has a real fascination with ducks or yellow birds. He lights up and squeals when he sees them, it’s quite funny
  • Favorite song we sing to him: “Rubber Ducky”
  • Takes 2 naps a day (I will be sad when he gives those up)
  • Still loves stroller and baby backpack rides
  • We think he may be left-“handed” which is weird to me for some reason, maybe because no one else is:) But very cool indeed!
  • Words: Dada, mama, dog dog (I think) and a whole lot of some other language that sounds kinda like Russian.
  • Smiles all the time, Jameson is a very happy little guy!

10 months

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Hanging Out With Momma!

Jameson is getting really good at crawling in his own way! In fact, this is all he wants to do all day. He knows he is Jameson now and we try to get him to come to us when we call his name. Before he would just ignore us and go the other way, silly boy. Last night we practiced his “come here”on mommy and daddy’s bed. It was so cute!crawling 1

crawling 2

crawling 3crawling 4

crawling 5

crawling 6

crawling7

The Need For His Hands

As some of you know, we have been in the media a little bit lately! We are telling our story and the need for Jameson’s prosthesis. We have received so much positive feedback which has been wonderful! But, I am finding out, that there are a few negative Nelly’s or Nancy’s, or whatever you call them. Some people are judging our decision to have our baby fitted for prosthesis. I understand that everyone is entitled to their opinion. That is fine. I just want to clear the air, so to speak, and let everyone know just why we feel the need for his prosthetic hands.eating cracker

I had one mother directly compare her child born missing one hand to Jameson. That to me is like comparing apples to oranges. I’m not saying that missing one hand is not difficult, I’m just saying that’s a far different scenario. In fact when I was still pregnant, I sobbed many times wondering why couldn’t my baby just have one hand. This mother said and I quote  “I would never buy my 9 month old expensive prosthesis….he will teach you a thing or two.” She’s right about one thing, he will teach us a thing or two, in fact he already does everyday!

As I have said before it is important to us as Jameson’s parents to try to give him ALL possible tools to have a better chance at a normal life. Because he is missing BOTH hands, the level of difficulties he will face are considerable. Our thoughts are that if we provide every option for him now, he will be much more adapted by the time he goes to school. Babies learn so easily at this age and are so adaptable, they are like little sponges. Why train your child to do things with his feet, when tools are available to provide him with a more ‘normal’ life? Using his feet will be an option, but why not give him every option. I know there will be days that he will not want his prosthetics on, and that is ok. With today’s technology, how can we not give him all the opportunities available? It is unfortunate that the cost is so high. Unfortunate that money becomes a factor and health care is not the greatest. But we have to try everything in our power to make it happen. He is our most precious gift and we want to be able to help him thrive. There is NO DOUBT in my mind that Jameson will be great at many, many things with or without his prosthesis.

cute baby

Quick Update on Fund-Raising For Jameson

We are ecstatic that fund-raising went so well for his first set of passive prosthesis! Because of all the amazing, kind, and generous people who donated we were able to pay for his new arms! Thank you so very much to all of you who supported Jameson and continue to do so! passive set

We are, however, not done. For his next pair we will have to come up with even more money. Depending on how fast he grows he will probably need new arms within the next 4-6 months. After he outgrows this set he will receive at least one Myoelectric arm. This is very exciting because a “Myo” will be 100% functional and operated by Jameson himself, where as his passive set is not. The passive arms have to be manually adjusted for him and the main purpose is to get him “used” to having something on. This is a very important first step in learning to use prosthesis.

The Myoelectric arms are much more expensive, but will ultimately be what helps him function more independently, and allow him to do things he would never be able to do otherwise.

In February we will start phase two on fund-raising. We are kicking it off with a fun evening event called High 5’s and a Thousand Hearts for Jameson hosted by the kind and amazing Michele Kelly! Details for this upcoming event are located at this link https://www.facebook.com/#!/events/385614368196720/?fref=ts

As of now, we have not received an exact amount for the next set, but the estimate is around 50 to 100 thousand dollars if you can believe it?! Insurance will pick up a fraction of that, so as you can see we still have a long way to go.

Thank you again to all of Jameson’s supporters! Keep spreading the word, we could not have gotten this far with out you!!!

passive

Thankful For Modern Prosthesis

When we first learned of Jameson’s limb deficiency we knew that fitting him with prosthesis was his greatest chance at a more “normal” life. After endless hours of prosthesis research I discovered how lucky we are to have today’s modern medicine and technology. Prosthesis have come a very long way!

prosthetic leg circa 1978

prosthetic leg circa 1978

Back in 1978, when I was born, the prosthesis were made from mostly wood and fibreglass, they were very uncomfortable, barely functional, and unattractive.

We feel so blessed to have more advanced options for our baby.

At Advanced Arm Dynamics they showed us some of the current options like: very realistic skin, manicured nails, tattoos, Ipod docks, and of coarse the electric ones. It is truly amazing and we are very excited to see what the future has in store for Jameson!

Some of todays todays options:

manicured nails

realistic skin

phone dock

tattoo

ipod arm

myoelectric

We Hope Everyone Had A Very Merry Christmas!

Christmas 2012

Christmas 2012

Christmas 2012

Christmas 2012

Christmas 2012

Christmas 2012

Jameson at 8 Months

Jameson adds so much joy to our lives!

At 8 months, he loves playing in his excersaucer, riding in the backpack, the stroller, and rolling around on the floor! With his new prosthesis we are working on crawling and without them he does a really great scooch! I have a feeling that in no time I will be chasing him all over the house. They certainly do grow up way too fast.

He started saying “da da” a few weeks ago and continues to do so about a million times a day! So exciting to hear his first word. And soon after that he started to say “ma ma ma ma”,but this only happens when his is very tired and a bit whiney. I think that that goes with the territory of being the ma ma:)

Jameson now has five teeth, two down and three up. And I am pretty sure that the six one is also well on its way. His “teething days” are not fun for anyone. I feel bad for the poor baby, it must really hurt. We will all be more than ecstatic when this teething business is over.

At his last check up, he weighed about 19 lbs and was in the 97% for height. I think that he will be a tall boy, just like his great grandpa who was 6’4″!

teeth!scootch

rollin on floor

Exersaucer

back pack