Making Everyday Memories

Some of my favorite memories of this year so far…

The moment Jackson was born. So amazing to have done this twice, I feel incredibly blessed.

Jackson’s smile. To die for, loving those double dimples.

The fun adventures we have experienced recently in our new neighborhood.

Jameson’s smile. Love that handsome little boy.

Watching my two sons bond. Even at this young age I can tell that they are going to be best friends.

And us. Our little family of four.

 

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Jameson at 8 Months

Jameson adds so much joy to our lives!

At 8 months, he loves playing in his excersaucer, riding in the backpack, the stroller, and rolling around on the floor! With his new prosthesis we are working on crawling and without them he does a really great scooch! I have a feeling that in no time I will be chasing him all over the house. They certainly do grow up way too fast.

He started saying “da da” a few weeks ago and continues to do so about a million times a day! So exciting to hear his first word. And soon after that he started to say “ma ma ma ma”,but this only happens when his is very tired and a bit whiney. I think that that goes with the territory of being the ma ma:)

Jameson now has five teeth, two down and three up. And I am pretty sure that the six one is also well on its way. His “teething days” are not fun for anyone. I feel bad for the poor baby, it must really hurt. We will all be more than ecstatic when this teething business is over.

At his last check up, he weighed about 19 lbs and was in the 97% for height. I think that he will be a tall boy, just like his great grandpa who was 6’4″!

teeth!scootch

rollin on floor

Exersaucer

back pack

Thankful For So Much!

Tomorrow is Thanksgiving and my husband and I are thankful for so much! The most important thanks of all is of course, our son Jameson. We are so thankful for our beautiful child and that he is healthy.

We are also very thankful to all of the support and love that we have received on Jameson’s behalf. Thanks to all of you we have now raised $8,920.76!!! What an amazing amount of progress we have made! We are even closer to getting Jameson’s first set of little “hands”! Thank you, Thank you all and have a VERY Happy Thanksgiving!!!!

Jameson is ready for his first Turkey Day!

A Long Way To Go

As of Nov. 10th Hands For Jameson has collected $1,500.00! Yay!

Thanks to all the kind people who donated! A BIG thank you to you!

BUT, we have a LONG way to go. The total for Jameson’s FIRST of many sets of prosthesis came to $24,563.06. Our insurance would not accept our claim unless we submited a memo bill first. This means we have already been billed before receiving treatment. They only covered $11,068.04. We must come up with $13,495.02.

This memo bill came to us Nov. 6th. and the Provider wants it paid in full by December. We wish we could write that check ourselves but, sadly we cannot. We had hoped to have found a less expensive treatment, unfortunatly we did not. We were turned down by Shriner’s and Children’s Hospitals because they lack prosthetic departments here in Washington State. Jameson is on several waiting lists for foundations that help provide assistance to children in need of prosthesis but that takes awhile and we have already been turned down by a few because we have insurance.

Our hope is that all of you can help. A LITTLE donation is BIG to Jameson.

Pregnancy Stuck It To Me

To be able to FINALLY hold my baby in my arms I had to endure a bit of pain.Twice daily injections of Heparin helped prevent blood clots that could have potentially jeopardized my baby.This is what I needed to do in order to keep my blood thin enough during my pregnancy.

The perfect end result!

Hello World!

Hello World, my name is Brooke Davis. I am starting this blog to give my son a voice (because he is still a baby), find other families like us, and to allow others to share in our journey. This is my very first post and it is a little long, but bear with me, it explains the beginning of our story. Future posts will be much shorter, I promise!

On April 12th 2012, my husband Jim and I welcomed our son Jameson. It was the best day of my life! I was finally a mom. However, it could have potentially been the worst. The worst, because we were unsure of his health and survival upon being born.

Jameson
April 12th, 2012

Our story really begins in 2009, when I became pregnant with our first baby in April. Sadly, that pregnancy ended 9 weeks later. My doctor did not find a heartbeat at our first appointment. I was devastated, a miscarriage really? How could this happen to me? In those short weeks I had already fallen in love with that baby. I was hesitant, but soon became eager to try once more.

That September we were pregnant again! I was extremely happy and terrified at the same time. I did not want to go through another heartbreaking loss. Despite the fear we told the world of our pregnancy. Our first doctor’s appointment was horrifying, I was so nervous I was shaking. Unfortunately, that ultrasound did not go the way we wanted either. No heartbeat. Again, how was this happening to me? I was beyond devastated.

My OB was wonderful, he told me that we would get to the bottom of this. He ordered a series of tests to find a possible culprit. After being poked and prodded, I was diagnosed with a blood clotting disorder called Prothrombin 21210 gene mutation or factor II. Luckily, I was told I am heterozygous, a carrier of only one gene making my clotting disorder less life threatening. It did however, possibly cause a blood clot in the uterine wall cutting off the life support to each embryo.The diagnosis was great news in that this could be the problem and it was treatable. I could finally move forward, feel excited about getting pregnant again, and that the next time, the 3rd time is a charm!

I was immediately put on a baby aspirin regimen to help thin my blood to prevent future blood clots. That did not go well at all. Turns out I am deathly allergic to aspirin. This was not good, it was my hope for treating my clotting disorder. The only other treatment was much more harsh, daily injections of blood thinners. After two E.R. visits and over a month and a half of treating a terrible allergic reaction with steroids. I decided I needed a break. A break from doctors, pregnancy disasters, and heartbreak. We put all baby thoughts on hold. We were going to have a fun summer and try again later, much later.

Surprise, I became pregnant at the beginning of the summer. Apparently we did not do a very good job of “taking a break”. But none the less, we were beyond ecstatic!

After the initial overwhelming joy I began to feel terrified again. My doctor gave me the choice to either go along with this pregnancy naturally as I had before, or try the blood thinner injections. I was determined not to loose this baby, so I chose to do the injections.

My pregnancy started off a little rocky, I bled daily for the first 13 weeks. Luckily, it was just one of those things and did not affect the baby. Thank goodness! After that it was smooth sailing, no more nausea and I felt the baby kick by the 17th week. I was over the moon!

When we hit 20 weeks our extreme excitement and happiness took an abrupt turn for the worst. At the end of our mid-pregnancy ultrasound we were told (2 hours later) that there was something wrong with the baby and that my doctor would call me later. I was shocked, I saw the baby, he looked perfect. What was she talking about? They did not elaborate with any details and sent us home in complete and utter shock. We waited for 7 hours in agony for my OB to call. He said that there was something wrong with the baby’s arms and that he did not know what but it could be Amniotic Band Syndrome or ABS. He then scheduled us with Maternal Fetal Medicine at the Hospital for a follow up ultrasound to make sure. My mind was spinning. I still had NO answers. Did my baby even have arms? I did not know. That was probably the worst day of my life.

We had to wait a whole week for the follow up ultrasound. In that week I prayed to God several times a day hoping that it was all just a mistake.

Before the ultrasound, we were sent to a Genetic counselor, where we were finally told that our baby did indeed have arms, they just both stopped at the elbow. What, both arms? Are you kidding me? Because it was so symmetrical, as far as they could tell, it was not ABS, and they feared that he could have  a different more severe genetic syndrome. A syndrome that could cause many health issues and even death.  I cried so much that I could not even talk a word during that entire meeting.

At the ultrasound appointment they confirmed that he had no forearms or hands. They loaded us up with information on all possible horrible syndromes, but ultimately they had no idea what caused this anomaly. Giving us three options, to terminate, (which I immediately turned down), do an amnio to see if “maybe” they could find a cause which could endanger the baby, or continue the pregnancy as we were and hope for the best outcome. We choose the last option with out a doubt that it would be the best.

At 40 1/2 weeks I delivered a healthy 6 lbs 13 oz baby boy. Despite having been born this way, he has no syndromes, no health issues, just a fluke accident that is isolated to his lower arms. We are so blessed that he is our beautiful and amazing son. Our journey however, has just begun and we face many challenges ahead.