Needing New Hands Already?

Jameson, my precious little cutie patootie!

Jameson, my precious little boy!

My husband Jim and I were a little shocked the other day when Jameson’s prosthesis would not fit. Gosh, already? It was a little unexpected that our little guy out grew his first set of passive arms so quickly. Yes, kids grow fast, but goodness we’ve got a wild weed here! I guess I should not be surprised because he has worn size 12 month clothing since about 9 1/2 months. We just thought for sure he would be in this set of arms until the fall. Keeping up with his wear schedule at this point is pretty crucial in the whole process of learning how to use the prosthesis, adjust to them, and tolerate them. This process will get him ready for his really important next set, his myoelectric “hands”. Ideally, he will be ready for the myos at 18 months.

Luckily, we have been scheduled right away for the next available appointment at our prosthetic company Advanced Arm Dynamics. We leave this next week. Of coarse, they were wonderful and said not too worry they will adjust the prosthesis and get Jameson back on track! This major growth spurt was not at all a shock to AAD. I on the other hand, am still a little surprised. Or maybe I am in a little bit of denial, I want my baby to stay a baby. Don’t all mothers want that?!

My other concern is that he is probably going to need a lot more prosthesis than we originally expected.

A major question now is this: just how many sets is he going to need? Jameson is a growing boy and a fast one at that. Looks like we’ve got a long journey ahead of us with fittings, fund-raising, and faith that we will be able to provide our son with what he needs to lead a more normal life.

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4 responses to “Needing New Hands Already?

  1. Little Jameson is so handsome. You guys are amazing parents. Little Jameson is a hero and inspiring little angel. _ Hertz, Kettering, Ohio

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  2. Have you considered contacting the Shriners Hospitals? They have 22 hospitals in North America that specialize in orthopedic care. Their services are provided free of charge (including prostheses). Local Shrine Centers also provide funds to assist with travel expenses. My daughter was born with one hand missing. She had an elbow and a wrist but her hand was undeveloped. the Shriners provided her with a cosmetic prosthesis since she was functually able to do most everything. My husband is a Shriner today because of the wonderful work we’ve seen them accomplish. Feel free to contact me if you would like more information.

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  3. Thanks for sharing your story on the doctors. Babies and kids are so resilient, they overcome so much that as adults we can’t imagine how they do it. My son was born with a Congenital Diaphragmatic Hernia. http://www.cdhsupport.org He has had 2 surgeries since he was born and will be 2 in May. He is amazing and just such a happy boy. Jameson sure seems like a happy baby and I agree with the Dr. Sears, I think you will probably be better parents than had you not gone through the things you have. Best of luck to Jameson and to you guys. I look forward to following your blog!

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